Friday, March 23, 2012

The daily drip

             The changes in John are so little and steady that it is hard to write about them. 
             Is it important to point out that he can not identify a hat from a coat, a glass from a newspaper, the location of the bathroom from the den, how I should pee for him or how pajamas go on over day clothes.  All suggestions on my part need to be made three times before I simply walk him to the location or pick up the object. 

             His sentences are filled with words that are now more sounds than symbols.  "where is ski?"  "they coming?"  "need it"

             John's world is so scary and unstable that he needs my attention all the time, even in the middle of conversations I have with other people.  John doesn't like to share me with other people or projects of work I have to do. 

              He searches for comfort by roaming around the house, the driveway and now down the street.  He is looking for movement,  he wants to keep going, he wants go in the car.  The period of movements are increasing.

             There is no task left that he can do for himself by himself starting in the morning until laying down at night in bed.  There is no time that is safe for him without a companion in sight. 

             John is still polite most of the time.  He loves to eat, now very fast. 

             Our life together is slowly going to be redesigned this year so both of us remain safe and healthy.